DEBRA Singapore, a support group for patients living with congenital epidermolysis bullosa (EB) in Singapore.
At DEBRA, Our goal is to connect, assist and support epidermolysis bullosa (EB) patients and their family members.
National groups in over 40 countries - including US and UK
Dystrophic Epidermolysis Bullosa Research Association, Singapore (DEBRA Singapore), is a support group for patients living with congenital epidermolysis bullosa, a rare skin condition that in its most severe forms affects all of the body's linings, the skin, the linings of the mouth and oesophagus, and even the eyes.
Whether you've been naughty or nice, here's your final chance to be better this year. Be part of the Giving Week @ The Good Hub 2018 and support the Butterfly children.
Be neighbourly and reignite that kampong spirit. Drop by the DEBRA booth on Good Neighbour Day to learn more about our "butterfly children" and how you can help.
Debra Singapore is pleased to announce to its members, friends and supporters that the next AGM has been confirmed for the 18th of Nov, Saturday next, at the National Skin Centre.
Join us in our first ever global Butterfly Run. Butterfly Run. This signature event will be held annually to generate awareness for the rare genetic condition, Epidermolysis Bullosa (EB).
DEBRA Singapore is a group of people dedicated to supporting adults and children living with Epidermolysis Bullosa (EB) in Singapore.
The DEBRA Butterfly Run returns this year as a virtual run! This run is a fun distance of 5km non-competitive, family-orientated fun run with no stipulated time frame and no specific way of run. You can run, jog, walk with your family or your pet.
The "rules" are simple: All distances pledged are cumulative i.e. you can cover this distance over a period of time. You may run outdoors, or on your treadmill. Just remember to take screen shots of your treadmill meter or your run phone app. Upon completion of the 5km, send us these screen shots and claim your limited edition Butterfly Run Cap. It's that easy!
All proceeds raised will go towards defraying the hefty medical expenses and wound dressings for EB patients.
Your support is important to them, stay fit for a good cause!
|Individual||1 Cap||$25||5 km per person|
Grab a friend, partner or neighbour!
Gather the family and keep fit together
Step 1: Click the link below to register
Step 2: Run / walk on a treadmill OR run / walk with your pet OR run / walk outside with a running app
Step 3: Run can be accumulated over a period of time. Runners do not have to clock mileage at one go.
Step 4: Email a screenshot of your run (with a running app or photo of a treadmill) to email@example.com from the email you registered with in Step 1.
Step 5: Receive your entitlements in the mail after submission of proof.
Please email to firstname.lastname@example.org
(Donations are not tax deductible)