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ABOUT US

DEBRA Singapore, a support group for patients living with congenital epidermolysis bullosa (EB) in Singapore.

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UNDERSTANDING EB

At DEBRA, Our goal is to connect, assist and support epidermolysis bullosa (EB) patients and their family members.

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SUPPORT

DEBRA is committed to the well-being of its community.
Patients, Executive committee

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DEBRA AROUND THE WORLD

National groups in over 40 countries - including US and UK

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DEBRA SINGAPORE

Dystrophic Epidermolysis Bullosa Research Association, Singapore (DEBRA Singapore), is a support group for patients living with congenital epidermolysis bullosa, a rare skin condition that in its most severe forms affects all of the body's linings, the skin, the linings of the mouth and oesophagus, and even the eyes.

Our Goals
- Increase awareness of Epidermolysis Bullosa (EB)
- Provide resources, support and funding for EB patients and their families
- Create and strengthen networks for professionals involved with EB care or research, in Singapore and around the world
- Be a regional centre of research excellence, and medical and diagnostic support
- Foster the development of new Debra groups and mentor newly established ones.

HELP A CHILD

One of our ongoing challenges and initiatives is to raise the awareness level of EB in our communities and nationwide. If you would like to help us raise EB awareness, here are some ways you can make a difference.

EVENTS

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  • BUTTERFLY RUN 2020

    Feb 22, 5:00PM to 9:30PM
    Bedok Reservoir Singapore

    Butterfly Run 2020 hopes to raise awareness of the condition of Epidermolysis Bullosa (EB) and to show support to the sufferers and their caregivers. Proceeds raised will go towards co-funding treatment of sufferers in Singapore and towards education of healthcare providers in this area.

    Some EB patients struggle with painful blisters at the sole of their feet just for walking 50 metres at a time - a simple daily task we may take for granted. DEBRA Singapore hopes that during Butterfly Run 2020, as participants take each mindful step, we will all be more aware of how it might feel like for a group of people whose skin are as fragile as a butterfly's wing.

    As a participant of Butterfly Run 2020, you can look forward to receiving specially designed items of memorabilia such as runner's t-shirt, a medal and a pair of butterfly wings to be worn as you complete the running route!

  • WATCH OUR VIDEO

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    OUR FAMILY

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    CONTACT US

    OUR SPONSORS

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