.jpg){kind=logo}
Standing with EB patients through support, advocacy, and care
Supporting people living with Epidermolysis Bullosa (EB) in Singapore.
We are a volunteer run support organisation for those living with incurable and rare skin blistering genetic disorder, Epidermolysis Bullosa (EB). With over 20 families engaged, we support our members through service, education and advocacy while working closely with research partners to drive meaningful change for the EB community in Singapore and beyond.
.jpeg)
Epidermolysis Bullosa (EB) is a rare, incurable genetic condition that causes the skin to be extremely fragile, leading to painful blisters and wounds from the slightest friction or injury. Often referred to as “butterfly skin,” EB affects children and adults alike, making daily activities and medical care a constant challenge.
In Singapore, around 80 to 100 individuals across more than 50 families are living with EB. Each family faces unique struggles with wound care, frequent medical visits, and the high cost of specialised dressings and treatments. Learn More
News & Events
Support Our Cause
Your donation can make a real difference. Every contribution goes directly toward supporting patients' essential wound care supplies, medical financial aid, community engagement and advocacy and awareness efforts to ensure the voices of EB patients are heard in healthcare and policy.
